Lots of good advice and recommendations so far. Obviously you are not alone in your suffering or your hope. The decisions you face have been faced and overcome before. I would ask that your keep an open mind, don't ever give up hope and DO NOT let your life be defined by this disease! Admittedly, I have never been in your shoes, so I don't know what I would do, but I want to think my advice is still good. My plan, at 66, is to do whatever I can afford. My wife and I will enjoy our travel till we can't, but we have decided together to keep our joy in front of us and not be overcome by immediate circumstances. Please be as happy as you can be, and know that there are lots of folks who don't even know you, who are praying for you.