Forum Discussion
kalynzoo
Oct 29, 2016Explorer
We were so very close to that situation 3 years ago. My wife's creatine improved and we are presently safe, but under medical care with medication and a salt free diet, followed religiously. We had our moments, and things will never be the same as when we were young. There were complications, but we now are retired together and travel together. Life is good.
We found a lot of support on line in Facebook with groups from NxStage and DaVita. Once stabilized people travel with portable dialysis units. It can be done. It takes planning and patients. Supplies must be carried or shipped to destinations or dialysis units need to be contacted in advance to supply the liquids required. But just like RV.net, there are Facebook groups with experience to share stories and give support and information.
Best wishes to you and yours.
We found a lot of support on line in Facebook with groups from NxStage and DaVita. Once stabilized people travel with portable dialysis units. It can be done. It takes planning and patients. Supplies must be carried or shipped to destinations or dialysis units need to be contacted in advance to supply the liquids required. But just like RV.net, there are Facebook groups with experience to share stories and give support and information.
Best wishes to you and yours.
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