Feeling overwhelmed. Long post
Hi folks, This is a long one. Since 2010 I've had several "rare" or "unusual, but not unheard of" health issues. In April 2010 I woke up, sat up and the world went upside down. Aftr a tri...
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I had the same exact experience that you had with BPPV earlier this year. Woke up, world spinning and wouldn't stop, nausea, in the bathroom, etc. Called 911 because I also have a heart condition. Heart was fine. Diagnosed with BPPV in ER. Did Epley like you. Fixed it "mostly" like you. Still dizzy lying down, rolling in bed, bending to get into outside storage in RV. Just learned to live with it. After a couple months, I got a cold. Unbelievably, after the cold, the dizziness stopped! The stuffiness must have pushed those crystals around in my ear to their rightful place.
I have a friend who has the same hearing problem. Like you, she has learned to live a "new normal". She wears industrial strength ear muffs when in a crowded environment and such, and of course ear plugs all of the time in public. Have to talk softly with her and sudden noises really hurt. It's quite a mystery. She's being treated in Canada so not sure how that's going. Last I talked with her, they were just helping her adjust her lifestyle and giving her some exercises/behavior modification to try. She told me they are considering trying some kind of surgery, but I don't have any details. I know it's very hard to live with. Luckily, it's not life threatening. I have very sensitive hearing. Once heard a cricket in a trash can full of shredded paper in the another room in my house. But nothing as extreme as hyperacusis.
No experience with CSF, but sounds like that deserves a head scan.
Health problems can certainly be scary. But try not to jump to conclusions before you know the facts. That just adds more stress. I would think that yoga helps calm you down when feeling particularly stressed....like meditation.
I know all this doesn't really technically help you. But just knowing there are other people out there with similar problems hopefully gives you something good. There are many discussion forums online dealing with specific diseases, so you might try searching the internet.
Truly hope and pray you get the help you need.
I have a friend who has the same hearing problem. Like you, she has learned to live a "new normal". She wears industrial strength ear muffs when in a crowded environment and such, and of course ear plugs all of the time in public. Have to talk softly with her and sudden noises really hurt. It's quite a mystery. She's being treated in Canada so not sure how that's going. Last I talked with her, they were just helping her adjust her lifestyle and giving her some exercises/behavior modification to try. She told me they are considering trying some kind of surgery, but I don't have any details. I know it's very hard to live with. Luckily, it's not life threatening. I have very sensitive hearing. Once heard a cricket in a trash can full of shredded paper in the another room in my house. But nothing as extreme as hyperacusis.
No experience with CSF, but sounds like that deserves a head scan.
Health problems can certainly be scary. But try not to jump to conclusions before you know the facts. That just adds more stress. I would think that yoga helps calm you down when feeling particularly stressed....like meditation.
I know all this doesn't really technically help you. But just knowing there are other people out there with similar problems hopefully gives you something good. There are many discussion forums online dealing with specific diseases, so you might try searching the internet.
Truly hope and pray you get the help you need.
