Feeling overwhelmed. Long post
Hi folks, This is a long one. Since 2010 I've had several "rare" or "unusual, but not unheard of" health issues. In April 2010 I woke up, sat up and the world went upside down. Aftr a tri...
Forum Discussion
Thanks folks. It has seemed that I barely catch my breath from one bizarre health crisis and another comes along to swamp my boat.
I know CFS leakage in the nose can be bad... meningitis is mentioned a lot. So, I'm not letting any grass grow. I'll be on the phone tomorrow to my old neurosurgeon's office...and to my new doc here. I don't intend to get blown off.
I read from one of the medical websites (Nat'l Inst of Medicine.. not the flaky ones) that proper diagnoses in an ER is ZERO percent for this. And apparently there was a lady in Arizona (March) who had been misdiagnosed for months before someone finally caught her CSF leak. They all thought it was allergies.
This is not the first time I've had to fight to get a correct diagnoses... but with no real medical home to rely on... that makes it scarier. I don't know...or trust...any docs here. I'm hoping the KC neurosurgeon can give me a trusted referral.
I am working on the "diary" of all the weird stuff and the dates. I forgot to mention that since 2005 I also have had something called brachioradial urticaria. It's ANOTHER "unusual" neurological thing. Some say it's an injury to the neck that causes an irritation of the brachial nerve in the wrist or top of the elbow/forearm. Itches like you would not believe. Being in the sun makes it worse... in fact it usually only shows up in July and August when the sun is strongest.
Since the leak in my nose... the itch has disappeared. So THAT makes me wonder if it too is connected to all the weirdness.
Last night...and today too.. I just sat quietly and prayed.. God please help me.
I'm sure many of you have felt that way too. I want you all to know that I so very much appreciate your support. It's a lifeline.
thanks
cts
I know CFS leakage in the nose can be bad... meningitis is mentioned a lot. So, I'm not letting any grass grow. I'll be on the phone tomorrow to my old neurosurgeon's office...and to my new doc here. I don't intend to get blown off.
I read from one of the medical websites (Nat'l Inst of Medicine.. not the flaky ones) that proper diagnoses in an ER is ZERO percent for this. And apparently there was a lady in Arizona (March) who had been misdiagnosed for months before someone finally caught her CSF leak. They all thought it was allergies.
This is not the first time I've had to fight to get a correct diagnoses... but with no real medical home to rely on... that makes it scarier. I don't know...or trust...any docs here. I'm hoping the KC neurosurgeon can give me a trusted referral.
I am working on the "diary" of all the weird stuff and the dates. I forgot to mention that since 2005 I also have had something called brachioradial urticaria. It's ANOTHER "unusual" neurological thing. Some say it's an injury to the neck that causes an irritation of the brachial nerve in the wrist or top of the elbow/forearm. Itches like you would not believe. Being in the sun makes it worse... in fact it usually only shows up in July and August when the sun is strongest.
Since the leak in my nose... the itch has disappeared. So THAT makes me wonder if it too is connected to all the weirdness.
Last night...and today too.. I just sat quietly and prayed.. God please help me.
I'm sure many of you have felt that way too. I want you all to know that I so very much appreciate your support. It's a lifeline.
thanks
cts
