Forum Discussion
EPenney
Aug 21, 2013Explorer
Budster wrote:
That is great news! Whatever you do, do NOT miss any of the followup checks. I was infected with VF in June of 2000. I was on mega-meds for over a year then the Drs said I was 'cured' and took me off the meds. They told me to check back in 6 months. After 3 weeks of being off the meds I developed a sore on my arm that would not go away, finally I went to have it checked out and sure enough the VF disseminated to my skin, back on the meds. Today I am on a maintenance program of 100mgs of Fluconazole and will be till the end. I do have a special circumstance with this VF in my ethnicity (Filipino) as we are more susceptible to the effects of VF and our immune system has problems with fighting fungus. There is a support group on line Valley Fever Survivor that was a big help to me and for many others.
Good luck to you and watch your health more than ever! Get checked out right away if something does not feel right. The VF is in our systems forever and can flareup at any time, you are never 'cured'.
I joined Valley Fever Survivor April 2009 after I was diagnosed in Jan. 2009. I use the same handle that I do on this forum, and you have replied to some of my posts on VF Survivor. The VF initially infected my left lung, and is disseminated, but stopped short of spreading to my spinal cord & brain. I was on 800mg/day Fluconazole for about 3-1/2 years, and then Fluconazole dosage was slowly decreased during the last year to where I was taking 200mg/day until the beginning of June this year. My liver surprisingly survived the high doses, but due to the stress to my liver I developed quite a pot belly.
How is your body reacting to the 100mg/day Fluconazole? I was still having a few side effects when taking 200mg/day.
I hope today finds you having a good day.
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