Forum Discussion
Spleenstomper
Jan 23, 2015Explorer
Another update: min pressure of ten eliminated all desats, so that part if good. Ive been on cpap for a month and my reflux is gone, my aches and pains while sleeping are gone and im sleeping much deeper than i ever thought possible.
But. Im still sleeping 12 hours a day and my main complaint is still daytime sleepines. I went back to the doc and he takes this seriously and thinks i have additional sleep disorders, specifically narcolepsy.
Im getting another sleep study next month with the MSLT and MWT (the narcolepsy naps test) which means Ill be at the sleep center nearly 24 hours. Narcopelsy is an auto immune disease (im probably also going to need a spinal tap which counts the amount of hyopcretin, which is only low or absent with narcolepsy), and there is no cure but there are meds that can try to keep you awake like Provigil and Nuvigil, but they are hard to get insurance to pay for and they are expensive. So i need the second sleep study for the diagnosis.
That is where i am. I am doing well with the cpap and i sleep now like i dont even have the mask on. Of course, leaks are an occasional problem, but we all know cpap requires patience.
Hope everyone is getting good sleeps....
But. Im still sleeping 12 hours a day and my main complaint is still daytime sleepines. I went back to the doc and he takes this seriously and thinks i have additional sleep disorders, specifically narcolepsy.
Im getting another sleep study next month with the MSLT and MWT (the narcolepsy naps test) which means Ill be at the sleep center nearly 24 hours. Narcopelsy is an auto immune disease (im probably also going to need a spinal tap which counts the amount of hyopcretin, which is only low or absent with narcolepsy), and there is no cure but there are meds that can try to keep you awake like Provigil and Nuvigil, but they are hard to get insurance to pay for and they are expensive. So i need the second sleep study for the diagnosis.
That is where i am. I am doing well with the cpap and i sleep now like i dont even have the mask on. Of course, leaks are an occasional problem, but we all know cpap requires patience.
Hope everyone is getting good sleeps....
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