Pulmonary Alveolar Proteinosis
My wife has to have a lung biopsy to rule this in/out. Anybody have any experience with this? It's very rare, .01% of 100,000 get it. Doc says he has to be absolutely correct on the diagnosis, "I c...
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It's been 3 years since she was diagnosed. She has gone through 6 Lung Lavages, painful, dangerous. On Oxygen 24/7.
2 days ago was diagnosed with Pneumonia. Sometimes PAP clears itself, that's what we were hoping for. X-Rays for Pneumonia shows that was not the case. Her PAP has advanced, if anything.
Got to give a shout out to the Pulmonary Doc who said, "I don't want to go through the training to administer that drug for JUST one person". Hypocratic Oath my fat A$$.
So, more Lavages are probably in her future and possibly a trip to Ohio for a Center that has clinical trials.
Sorry for venting. Thanks for listening.
2 days ago was diagnosed with Pneumonia. Sometimes PAP clears itself, that's what we were hoping for. X-Rays for Pneumonia shows that was not the case. Her PAP has advanced, if anything.
Got to give a shout out to the Pulmonary Doc who said, "I don't want to go through the training to administer that drug for JUST one person". Hypocratic Oath my fat A$$.
So, more Lavages are probably in her future and possibly a trip to Ohio for a Center that has clinical trials.
Sorry for venting. Thanks for listening.
