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ol__yeller's avatar
ol__yeller
Explorer II
Jul 14, 2017

RVing With Quadriplegia

My wife became quadriplegic a year ago due to a tumor in her spinal cord and the resultant surgery. She has some movement but at least for the foreseeable future, she will be wheelchair bound. Prior to this we enjoyed camping in our 26' Class C. Now, a year later I am trying to figure out how can we get back into this hobby.

I would like to hear from those who have solved some of the challenges that quadriplegia presents with respect to camping and RVing. I'm thinking that instead of her expensive, powered wheelchair, a manual tilt in space chair would be easier to manage in the confines of an RV. I know there are manufacturers of lift devices to get her into the RV. I also think that the passenger seat could be removed and anchors installed so she can ride up front. We use a Hoyer lift at home to transfer her from chair to bed but I think the confines of the RV are too tight for this device. She is working hard in therapy to effect a slide board transfer but we are not there yet. Also, I am 64 with a heart condition so I don't have the stamina to physically lift her. I'm thinking that either the dinette bed would work for her with foam wedges or I could look into installing a hospital bed in that space.

Finally I wonder how I would go about showering her. There is no way I could get her into the RV shower. As we mostly showered in the RV before, I never paid much attention to what campgrounds offered in the way of shower facilities. Do most or many campgounds have showers big enough for a handicapped person with a wheelchair? At home we use a tilting shower commode chair so I will also have to figure out what I will shower her in.

All things considered I may just have to bite the bullet and buy a larger RV to accommodate everything we need. I know resale on these is very poor due to the low demand so I would probably look at buying a used one.

I know many would think that this endeavor is a big waste of money and we should just give it up. She has been the most wonderful spouse and as her time here is going to be limited, I'd like to fulfill as many of her wishes as I can. Anyone whose life has been touched with quadriplegia knows that anytime one can experience things they did before is very precious. Any references to resources would be appreciated. Of course cost will enter into any decisions as we are comfortable and retired but by no means rich.
  • Wow! I appreciate everyone's suggestions and willingness to help us work through this. When I told her yesterday about what I am trying to work out, she was very excited about it.

    I think I'm going to have to give up on our current RV. There is just so little room to carry everything she requires at this point. I looked at The Winnebago website and really liked what they are doing for access enabled RVs. At this point, I don't know what the costs would be and I assume that to add handicap access is expensive on a new rig. I also know WB likes to steer you to their dealers but I don't think that most dealers would know much about ordering an access RV. I have looked at the used market and there isn't a lot available right now, probably because we are in the heart of the summer camping season. It will probably be our best option.

    I also considered toy haulers. It would have to be a bumper pull as we need an access van for my wife to travel in. She wouldn't be able to very easily get up into a large pick-up. That would mean besides buying a trailer, we'd have to sell our Sienna access van and get something bigger like an E450 van which could prove to be costly on top of the price of the new TT.

    I really appreciate everyone's help and suggestions especially those that had resources to suggest. At this point, I think I might try to sell our RV and plan on looking for a nice used accessible unit. Maybe we can get one in time to enjoy some of the late Indian summer we enjoy here in the Great Northwet.
  • Naio's avatar
    Naio
    Explorer II
    If you get another Class C or A, what will you use for sightseeing, grocery runs, etc.?

    That might be an advantage of the van plus toy hauler option. But you can see from my sig I am a van fan :B
  • Remember the timing of RV sales. Summer is peak season, so people are looking to buy in March-May and looking to sell in September or later. Be patient and keep looking. Even if you don't find one in time to use it this summer, your wife can enjoy weekend trips over fall and winter and look forward to next summer. As someone else suggested, look for bus conversions. Even if you can't find one that has everything you need, you can probably come close enough to make it worth modifying. The toy hauler idea sounded promising too. I have mobility issues and have been looking for months for a motorhome that I can use. Finally found a lovely Class A last week. So don't give up!

    Also, travelling in a motor home without a tow vehicle is quite manageable. That is what I did with our previous 2 motorhomes, a 29' Fleetwood and a 34' Fleetwood. We never took along a toad. Very occasionally it kept us from doing something (I chickened out of trying one steep-looking road in Yellowstone) but not often. It did require some advance planning, but OTOH it was a plus to only have to unload the groceries once. ;)

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