Traveling with ALS? Kinda long
Don't really expect much response to this post since so few people (thankfully) have ALS but DH does so thought it worth an inquiry. We are most-timers now since our NJ home with stairs does not wo...
Forum Discussion
I had two younger brothers pass a few years ago after they became afflicted with ALS, what a cruel disease. One lasted about a year after the ALS diagnosis, his brother who passed away about five years later lasted about the same amount of time. So it's of utmost importance that the afflicted person gets to see and do things while they, and you, can. Glad you and your DH were able to spend time together visiting those places, keep him going on enjoyable visits as long as you can. Especially nearby places that hold good memories of past years. I remember my brother was really happy when we went up to one of our favorite places to visit when we were kids, he knew that time was running out and it was really important to squeeze in good memories while he was still mobile. He and I communicated by his responding to me by writing notes in a tablet, still have those tablets as a memory of him. They now have computers or whatever that can help him communicate with you. God bless the time you and DH have left and lets hope that his suffering (and yours) is not too long and painful. Take care and God be with you!
