Traveling with ALS? Kinda long
Don't really expect much response to this post since so few people (thankfully) have ALS but DH does so thought it worth an inquiry. We are most-timers now since our NJ home with stairs does not wo...
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My son-in-law is my daughter's only caregiver as they live across the country from us. What makes ALS so terrible is that it does not affect the mind at all and you slowly watch your muscles just waste away and you slowly lose the ability to walk, write, talk...and finally breathe. She was still working and managing a sports arena office staff up until last fall. I think that's what kept her going so long.
The motorhome would have been so perfect for them; I only wish I could have just bought it for them. Right now, they're looking at another winter storm (in March!) with a possible 'nother 7" of snow.
I'm sorry to hear of your husband's passing but am so glad you both got to travel as and where you wanted. We need goals in our lives and he had his. Isn't this country beautiful??
The motorhome would have been so perfect for them; I only wish I could have just bought it for them. Right now, they're looking at another winter storm (in March!) with a possible 'nother 7" of snow.
I'm sorry to hear of your husband's passing but am so glad you both got to travel as and where you wanted. We need goals in our lives and he had his. Isn't this country beautiful??
