20K and 2.5 yr fight secures a win over HOA for RV parking

toedtoes wrote:

TOOBOLD wrote:
Did anybody look at the size of that boys wheelchair and how large it is? Has anyone thought about the turning radius that is required, so he can move in the RV? The boy is currently on a ventilator. Has anyone thought that his medical condition has deteriorated over the years and the support system needed is more extensive.

Still think they did the right thing. The generator is not sufficient to move this young man out of harms way if a hurricane is coming.

Toobold - That may all be well and true, but WE DO NOT KNOW because the article does not tell us that. The article does not tell us a lot of information. And that missing information is what's going to justify the decision or not. Do you know if they have a daily vehicle that can transport the boy to safety? The article doesn't mention their other vehicles. If they need to move quickly, a smaller, more maneuverable vehicle may be much more appropriate than a large class A motorhome. Again, we can throw in all sorts of considerations, but there are as many for them as there are against.

Just something else to think about. Have you ever seen the traffic jams on the freeways when people are evacuating for a hurricane? A daily driver might be easier to move, but what happens when the batteries die for his ventilator? Are they suppose to carry a generator in the car or do rescue breathing until they get to their safe destination.

I live in California and lived 2 miles from the epicenter of the Northridge Earthquake and my 5th wheel is stocked and ready to go as my emergency kit. I cannot imagine having a child with such medical needs and not being prepared for all his needs. His electric wheelchair, mechanical lift and ventilator needs tell me this child is severely comprised.

I understand this was about the special variance, but don't think many people understand the logistics of moving a person with such medical needs and the special circumstance this is. In most locations a generator would have sufficed, but they live in a flood prone area due to hurricanes. That RV is probably already stocked with his medical necessities that may make it unmanageable in a smaller vehicle. He is on a ventilator, is a daily driver equipped with a generator that would allow suctioning if he cannot manage his secretions? He looks immobile as per the electric wheelchair and the lift required to enter. Is there enough space in a daily driver to recline his wheelchair to change his diaper? Where would there parents be able to wash their hands afterwards if they became soiled while changing him? Would they be able to keep his necessary medication refrigerated, if needed, in a daily driver? God forbid this child might have a feeding tube. Could it have been done in a smaller RV who knows? Obviously the parents felt this one could accommodate him and felt strongly enough to take it all the way to the Louisiana Supreme Court.