Pulmonary Alveolar Proteinosis

It's been 3 years since she was diagnosed. She has gone through 6 Lung Lavages, painful, dangerous. On Oxygen 24/7.

2 days ago was diagnosed with Pneumonia. Sometimes PAP clears itself, that's what we were hoping for. X-Rays for Pneumonia shows that was not the case. Her PAP has advanced, if anything.

Got to give a shout out to the Pulmonary Doc who said, "I don't want to go through the training to administer that drug for JUST one person". Hypocratic Oath my fat A$$.

So, more Lavages are probably in her future and possibly a trip to Ohio for a Center that has clinical trials.

Sorry for venting. Thanks for listening.

Thanks for the link, Tiger.
Hopefully she's among the 75% that survive.

Discalimer: I am retired reference librarian who specialized in health information. No personal experience with this condition.

Here is info about it from the National Library of Medicine, a far more reputable resource than just googling around.

http://www.nlm.nih.gov/medlineplus/ency/article/000114.htm

I hope that all turns out well for your wife.