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old_guy's avatar
old_guy
Explorer
Jan 21, 2014

what to do.

I really don't know where to start but here goes. My DW has MS and I have taken her to see a specialist in Portland Oregon the last few years. She was on the daily shots and they were starting to get to her so the Dr put her on the new pill. well the new pill was or is so much worse than the shots. she gets so she doesn't know who she is or any one else for that matter ad throws up a lot. She is losing weight like crazy and So we made an appointment to go to Portland to see the Dr last friday. well, she was feeling pretty good considering on the trip down and we ran into some traffic back up due to a wreck, which is pretty normal for Portland, they have to have a wreck every 1/2 mile or it just won't be Portland. Well, we called the office to let them know we would be 15 minutes late and they told us we had to reschedule since the Dr wanted to leave at noon that day. I told DW not to reschedule we didn't want that. but the gal did it any way. 15 minutes late and who has ever been to a dr's office and got into see the dr on time. they are always behind but the office gal did not listen. I have spent the last three days listening to my wife moan and groan from pain in the lower back caused by the MS , any way I really don't know what to do to help her. I called the portland office this morning and I really wasn't the nicest person in the world by this time and they finally called me back tonight, not the nurse, not the Dr, but a office manger to find out what she could do. I told her what was going on and I finally told her that I was fed up with the poor help I was getting and fired the whole lot of them on the spot. I told her I think a lessor person who look into suing them for poor handling of my wife's needs. BS I know but I think I got my point across to her. I will have to look up the nearest MS DR so I can get some help for her. sorry to rant so long but I am at my end of the rope. I know this isn't over yet, but we were planning to go to AZ in a few days and this puts it all on hold now. maybe next year.

12 Replies

  • I'm so sorry for what you're going thru. You're right....that's BS and you and your wife shouldn't have to go thru that. Take her to an ER....they should be able to help her with the immediate problems. And yes, I'd be finding a new doctor. I don't know where you live, but I lived in Salem 10 yrs ago and ended up taking my husband to Providence in Portland. You do NOT need to have a referral from a doctor. They were AWESOME. The doctor in Salem was letting my husband die and denying what his REAL illness was (he claimed just emphysema -- turns out DH had leukemia and congestive heart failure, too)......so DO be an active partner.....and yell your head off. She should NOT have to be in so much misery!
  • I feel your pain! My wife has been to both UCLA and Stanford to no avail they want to put her on embril but she is afraid to take it because UCLA put on 60 Milligrams of pregnazone and she got a massive infection and ended up in the hospital on IV antibiotics for six Weeks.

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