Dialysis on the road

[beachcomber_1]

Anyone traveled with portable machine? My wife is close to going on dialysis. What problems have you had.

[rcmiller32]

Go over to Forest River Forums (different group and web site) and search for Herk7769 and private message him. His wife was on a unit while camping. She just got a transplant a couple months ago. He modified there 5th wheel for it. Tell him ResQfrog from the FROG rally's sent you. Good luck

[kalynzoo]

I found one of the Facebook sites:
WELCOME to the Home Dialyzors United (HDU) GROUP! Here you may share, ask questions and discuss issues. Even if you need a place to vent (dialysis related in a healthy manner, know that you will have found a safe haven here.

Although the HDU group has a large membership of home dialysis patients and care partners we focus on supporting and providing information as well as sharing individual experiences in the following areas:
CKD (Chronic kidney disease of any

[kalynzoo]

We were so very close to that situation 3 years ago. My wife's creatine improved and we are presently safe, but under medical care with medication and a salt free diet, followed religiously. We had our moments, and things will never be the same as when we were young. There were complications, but we now are retired together and travel together. Life is good.
We found a lot of support on line in Facebook with groups from NxStage and DaVita. Once stabilized people travel with portable dialysis units. It can be done. It takes planning and patients. Supplies must be carried or shipped to destinations or dialysis units need to be contacted in advance to supply the liquids required. But just like RV.net, there are Facebook groups with experience to share stories and give support and information.
Best wishes to you and yours.